ARTS
& OPINION: They are ugly, they are rotting, they stink
of death, the room stinks of death, you stick your fingers
up their asses to make them shit, help me understand this.
Why are you there?
MIQUE:
First of all, I object to your characterization of my working
environment. The beautiful moments I share with these ‘dying,
rotting, wretched human beings’ – to use your
‘unkind’ words – more than compensate for
the inconveniences you outlined in your question. Those of
us who choose to go through unpleasantness and pain -- not
unlike someone who decides to do 100 push-ups every morning,
-- do so because the rewards more than offset the discomfort.
The fitness and general well being enjoyed by the person doing
the push-ups is at least equal to the energy and effort spent,
otherwise he wouldn’t do it. Are you following me, Mr.
Lewis.
ARTS
& OPINION: May I rephrase my question?
MIQUE:
You don’t have to, I know you are set on bringing attention
to your publication, but one day, if you’re lucky, you’ll
be counted among the ‘dying and rotting and stinking
and incontinent’ and you will not feel you deserve to
be characterized by that kind of language. (Lewis, humbled
-- i.e. ostensibly out of character -- with an impatient nod,
encourages his interlocutor to proceed).
To
your question, what I think all of us palliative care volunteers
have in common is that we have been abandoned in some terrible
way: quite a few of us were given over for adoption, some
of us have been abandoned or rejected in our relationships,
marriages, friendships. And it hurts us to see others abandoned
by either their families, or by life circumstances, especially
when they are dying. But we are doing it for ourselves, too.
We need to feel needed, we need to feel connection, again
and again and again because we know what it’s like to
be cut off. What they give back is so strong, so totally unconditional,
so real, so transparent, you become almost addicted to being
that appreciated, just as they become addicted to your care,
your love. We are not heroes, Mr. Lewis. We get as much out
of it as they do.
ARTS
& OPINION: Are you obsessed with death?
MIQUE:
I’m obsessed with life. Being with the dying is part
of that obsession.
ARTS
& OPINION: Explain?
MIQUE:
The dying have so much to teach you about life. The near-dying
have lost almost everything, some of them can hardly breathe,
some can’t see, or hear – just being with them
makes me acutely conscious of the beautiful world I inhabit
which they have lost, a world that is mine now, but a world
that won’t always be there for me.
ARTS
& OPINION: What do you say to the person who accuses you
of being afraid of death, of using these people for your own
means, to get used to the idea of death, to satisfy your curiosity
about what it’s like to die. Are you like the boxing
fanatic who can’t see enough fights because he's obsessed
with death and frustrated by it because you can only get so
close to it and no closer.
MIQUE:
Your analogy is a good one. And yes, we are fascinated, obsessed
with death, the mystery of it. And what they say and see before
death is so interesting: some of them see angels, some of
them talk to their dead loved one, some of them report their
loved ones coming back, some are scared because they don’t
know if there’s a next world.
So
yes, I’m there because I fear death, but I love the
emotion of fear even more. But prior to all this – prior
to what you would call our ‘morbid’ curiosity,
prior to our fears and obsessions, prior to what is hidden
from us -- is the fact that we care for them because they
need us and we want to care because we want to be needed.
ARTS
& OPINION: How do you help those who are afraid?
MIQUE:
By being there, as their link to life, accompanying them,
as far as I can, to where they are going, where accompanying
is more of an emotion than motion. For some of them, just
being touched puts them at ease. Most people at the end of
their lives are like children: they want attention, to be
held, soothed and reassured. What most people don’t
realize is that dying is more mental than physical. On the
other hand, there are some people who are so convinced they
are going to meet their spouses, or parents they almost can’t
wait to cross over.
ARTS
& OPINION: How do you deal with all the deaths you witness?
MIQUE:
I accept them the way they are and have no right to ask them
to stay longer. But it took me a while to learn that. My attachment
to them is now defined by that limitation which allows me
to cope with death on a daily basis What is sometimes more
difficult to deal with is the attachments they form with us:
they want us to always be there for them but we can’t.
We have other patients, we have lives outside palliative care
– but it’s hard for them to understand that. Sometimes
we have to remind ourselves that we have our own lives, our
own families that need us.
ARTS
& OPINION: Is there a gender factor?
MIQUE:
Most definitely. Women are drawn to this kind of work much
more than men, but not exclusively. From a caregiver’s
standpoint, I have more facility with males because they are
more direct, more honest about their needs. In terms of their
response to dying, women remain more attached to material
things than men, more concerned about the neatness of the
room, their physical environment, their appearance. Men are
more focussed on the bonds between themselves and the people
that remain in their lives. I suppose you could say men are
more spiritual at the end.
ARTS
& OPINION: Will you be disappointed if someone like yourself
isn’t around when your time comes?
MIQUE:
No, I have myself and I have my God, and I don't expect anyone
to be there. I don’t believe I need someone like myself
because I've been preparing for this all my life. This might
sound strange but I've been wishing for death all of my life
because I love life and dying is part of it.
ARTS
& OPINION: Your views on euthanasia?
MIQUE:
I personally don’t believe in euthanasia. Only God can
make those decisions.
ARTS
& OPINION: Have you ever helped anyone cross over?
MIQUE:
As you can well imagine, it doesn’t take long for myself
and my colleagues to become very close to the people we look
after – as well as their immediate families. It happens,
in special circumstances, that we make cocktails available.
We do not administer them. But I would rather not discuss
this in any more detail.
ARTS
& OPINION: When you look at how other people live their
lives, do you consider yourself normal?
MIQUE:
Absolutely not. We don’t have regular friends, regular
relationships, regular anything. And we always seem to find
each other. I guess we live on the edge of something even
though I’m not sure what that something is – only
that were happier there than anywhere else. But don’t
get me wrong. I’m not saying that we’re better
than other people, only that we are special. We have a gift
and we know it, like a musician knows of his gift, but the
nature of the gift is that it must be shared, otherwise it
is a gift that isn’t given.
ARTS
& OPINION: Thank you, Mique. This has been a pleasure
and learning experience. I’m still not sure if I can
make the leap to what makes you tick, but thank God you and
your fellow ‘angels of mercy’ exist. May your
tribe increase.
MIQUE:
I thank you for giving me the opportunity to talk about my
life.